Autism Speaks is leaving Canada. Is that a good thing?

In a surprising turn of events, Autism Speaks has recently announced its decision to pull out of Canada by the end of January. This major autism organization, known for its star-studded fundraising events, has faced criticism in the past for its focus on finding a “cure” for autism and eliminating certain behaviors associated with the condition. However, as the landscape of autism advocacy evolves to embrace neurodiversity, the organization has come under fire for its outdated approach.

The news of Autism Speaks’ exit has been met with celebration by many in the autistic community. Online forums and advocacy groups have hailed the decision as a step forward for human rights and an opportunity to redirect funding to smaller, grassroots organizations run by autistic Canadians. This shift reflects a larger question facing autism non-profits and policymakers about the direction of autism services – do we try to cure autism, or do we include and support those who are neurodiverse?

One of the key criticisms of Autism Speaks has been its focus on controversial research projects, such as the MSSNG Project, which aimed to identify an “autism gene” and potentially eliminate it. Critics argued that this research was driven by eugenic ideas and did not address the real-life needs of autistic individuals, such as improved housing, employment, and access to healthcare.

While Autism Speaks has defended its work and contributions to the autism community in Canada, some advocates believe that the organization’s exit is long overdue. The backlash against Autism Speaks is seen as a reflection of a broader shift in public perceptions of autism and a growing acceptance of neurodiversity. As attitudes towards autism continue to evolve, there is a greater emphasis on supporting and including autistic individuals rather than trying to “cure” them.

However, not everyone is celebrating Autism Speaks’ exit. Some individuals, like author Tiffany Hammond, have expressed mixed feelings about the news. While acknowledging the organization’s flaws, Hammond credits Autism Speaks with providing valuable support and resources for her family in the past. She worries that families who have relied on Autism Speaks for assistance may be left behind as the organization withdraws from Canada.

As we witness the departure of Autism Speaks from Canada, it is clear that the conversation around autism advocacy is shifting. The focus is no longer on finding a cure, but on supporting and empowering autistic individuals to lead fulfilling lives. While some may mourn the loss of a familiar organization, others see this as an opportunity to pave the way for a more inclusive and supportive future for the autism community.